The federal authorities plans to scrape knowledge from a slew of personal health-related information for its autism examine, starting from prescription information, to non-public insurer claims, to non-public health trackers, Nationwide Institutes of Well being (NIH) director Dr. Jay Bhattacharya mentioned Tuesday.
The examine is related to Well being and Human Providers Secretary Robert F. Kennedy Jr.’s promise to discover a definitive reason behind the neurological and developmental dysfunction as quickly as potential, Bhattacharya mentioned at a public well being convention in Washington.
“The idea of the platform is that the existing data resources are often fragmented and difficult to obtain,” Bhattacharya advised a panel of NIH advisers in his presentation on Tuesday. “The NIH itself will often pay multiple times for the same data resource. Even data resources that are within the federal government are difficult to obtain.”
“The collection and processing of personal information, especially health-related information that can reveal health conditions in this way, is out of context and inappropriate.”
Kennedy has made quite a few controversial statements about individuals with autism, calling it an epidemic that’s greater than COVID-19 ever was.